Hektoen International

A Journal of Medical Humanities

Tag: Disability

  • Limping into victory

    Avi OhryTel Aviv, Israel There were people with disabilities in history who were not “limping into oblivion,”1 but rather paved their way to accomplishments and victories.2 The emperor Claudius, who may have had cerebral palsy or dystonia, reigned in the first century AD. During that time, the Roman Empire expanded greatly. He decreed that if…

  • On becoming a disabled physician

    Mel EbelingBirmingham, Alabama, United States The same prominent scar blemishes each foot: beginning two inches below my big toe, it slithers along the medial aspect of my foot, making a hairpin turn around my ankle before coming to an abrupt halt on the opposite side, two inches below my pinky toe. I have bilateral congenital…

  • Two tales of talipes equinovarus

    Christopher WalkerBielsko-Biala, Poland Congenital talipes equinovarus, better known as clubfoot, is a poorly understood but surprisingly common medical condition. According to Ansar et al, it affects about one in one thousand newborns, though this figure varies by country.1 There is a roughly fifty-fifty split between those born with bilateral clubfoot and those with only one…

  • Enfreakment in the medicalization of difference

    Camille KrollChicago, Illinois, USA Exalted showman P.T. Barnum was thrilled when he discovered Joice Heth, a severely disabled elderly slave woman. In grotesque detail, he assessed the value of his first sideshow acquisition with relish: I was favorably struck with the appearance of the old woman . . . She might almost as well have…

  • Red right hand: Ectrodactyly as a metaphor

    Erin CrouchKatelyn McDonaldTacoma, Washington Hands make us human. We lend a hand, we put all hands on deck, we know things like the back of our hands. Hands show emotion, beauty, and grace. But as Tolstoy wrote, “What a strange illusion it is to suppose that beauty is goodness.”1 Perfect hands do not make a…

  • Narrative control and the monster within: Empowering disability in Jane Eyre

    Mary ValloGlastonbury, Connecticut, United States In chapter twenty-five of Charlotte Brontë’s Jane Eyre, Jane tells Rochester that the night before, “a form emerged from the closet” in her room and tried on her wedding veil, ripped the veil apart, and blew out a candle in her face before Jane fainted with fear.1 Although Jane is…

  • Queer and unked: Disability, monstrosity, and George Eliot’s “Sympathy”

    Christina LeeKent, United Kingdom In The Mill on the Floss, the intellectual and sensitive Philip Wakem, who has a curved spine from a fall in infancy, is called “a queer fellow, a humpback, and the son of a rogue.”1(II.vi) In the manuscript Philip Wakem is branded “queer and unked.”1(V.v) “Queer” used here means “a state of strangeness and…

  • New life

    Hannah JoynerTakoma Park, Maryland, United States At first I thought I had a sinus infection, expecting to come home with a course of antibiotics. The doctor initially agreed, but when he heard my account of facial numbness spreading around my left eye, he referred me immediately to a neurologist, who sent me for an emergency…

  • The poetics of the body

    Rachel BaerPennsylvania, United States Pathographies are narratives that describe the intimate emotional effects of illness and disability. Body Story, a creative work in which Julia K. De Pree shares her experience with anorexia, exemplifies this type of writing. According to the National Institute of Mental Health and the National Eating Disorders Association, anorexia is an…